What it does
Uses continuous physiological monitoring and personalized AI prediction to help families and care teams act earlier, described publicly at a high level while clinical and filing work continues.
SickleSafe Foundation
Reducing sickle cell mortality and suffering. Completely free for the families we serve.
A family-centered nonprofit offering support, education, and community around the full sickle cell journey.
150,000
Nigerian SCD births a year
50%+
Under-five mortality without treatment
100,000
US patients with sickle cell
0
Service fees we charge families
SickleSafe AI LLC
The sister company building the technology platform.
SickleSafe AI LLC is the separate for-profit operating company developing a patient-built platform for earlier sickle cell crisis prediction, care coordination, and long-term monitoring support.
The Foundation exists so families who need support are not excluded by cost, geography, or circumstance. The LLC exists to build and validate the technology infrastructure that can serve patients, caregivers, clinicians, and institutional partners.
How alerts work
Designed around calm, tiered notifications for the patient, caregiver, and clinician, with practical next steps coordinated through approved care pathways.
How it relates to the Foundation
The entities are legally separate and ethically firewalled. Foundation services stay free and unconditional; technology access never becomes a condition for disease-modifying treatment.
100K
US patients with sickle cell
20M
Patients globally
0
FDA-cleared predictive products today
Our programs
Support for the whole family
Active SCD Management
A free support program for families actively managing sickle cell disease, combining monitoring support, community health worker connection, education, and care navigation.
Post-VOC Recovery
A continuity program for families after a crisis, built to help them settle back into daily life with support and connection.
Post-Gene-Therapy Monitoring
Long-term family support for patients after advanced therapy, provided free to families and ethically separated from commercial partnerships.
Family and Caregiver Support
Education, peer connection, practical referrals, and family support for the people carrying daily care responsibilities.
CHW Training
Training for community health workers so local teams can hold the door open for families closer to home.
Patient and Family Education
Plain-language education for families in the languages and formats they can actually use.
From the families we serve
Stories will appear here with consent once programs are active. Until then, this space is held for families, children, caregivers, and those remembering someone they love.
Help us keep every service free.
Your gift helps us hold the door open for families facing sickle cell disease.