SickleSafe Foundation

Patient Lifecycle Programs

Active SCD Management

A free support program for families actively managing sickle cell disease, combining monitoring support, community health worker connection, education, and care navigation.

Scope

Pilot families first, then expansion through Nigerian hub partners and US community partners.

Who it serves

Children, teens, adults, and caregivers living with active sickle cell disease.

How to access

Join the Foundation contact list. Enrollment opens through approved clinical and community partners.

Ask about this program